Down Syndrome NSW Library Collection
FAMILY RELATIONS
M - Z by title
Making a case for life: A new definition of perfection
Wincik, Stephanie, Girard, Pennsylvania:One Horse Press, 2009.
Explores the myth of the perfect child and beliefs about the negative impact of having a child with Down syndrome.
A Minor Adjustment
Merriman, Andy. London : Pan, 1999
Sarah Merriman is six years old, conventionally naughty and enchanting, and a radio star and she has Down syndrome. The story of the family behind the hit BBC radio series.
Moose: a very special person
MacDonald, W. Scott and Oden, Chester, W. Cambridge MA : Brookline Books, 1978
Told to place their child in an institution, this African American family instead resisted this advice and raised their child as part of their family.
Mummy, why have I got Down's syndrome?
Philps, Caroline. Oxford : Lion Books, 1991
Caroline Philps's thoughts on her family's life as Elizabeth grows, and her reactions to Elizabeth's insight into her disability.
Natural Harmony: Jade's Story
Albrechtson, Gail. Victoria BC : Trafford Publishing, 2003
Jade, born with a congenital heart defect was placed in foster care at birth. Eventually reunited with her mother, the story traces the universal life themes of frustration, coping, sadness and joy.
One day at a time: children with a disability-family experiences
Davies, Sue. (ed.). Kurrajong NSW : Kurrajong Early Intervention Service. 2001
Families openly and honestly share their lives. The title reflects the advice that many families have found helpful, to take "one day at a time".
Onward, Crispy Shoulders! An extraordinary life with an extra chromosome
Perry, Mary Haakenson. Homer, Alaska:Wizard Works 2004.
Story of a man with Down syndrome born in 1945 growing up in rural Alaska as the eldest of 7 children. Jim Haakenson enjoyed a great family life, a job he loved and sadly developed Alzheimer’s disease. His story is told with love and humour and is an interesting read.
Opening the doors: the hidden lives of carers
Holdsworth Community Centre.2008.
A collection of personal stories by carers in the Woolahra, NSW area. Includes stories by Fiona Place and Paul & Sabine Doney, parents of children with Down syndrome.
Pencil portraits 1971-1990
Perske, Martha. Nashville TN : Abingdon Press, 1998
The artist's pencil portraits of people with disabilities, many with Down syndrome, have illustrated many books and a wide range of publications. She has given permission for these works to be used for non-commercial purposes by community groups representing people with disabilities. The drawings bring their subjects to life, and ability and personality shine through.
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