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Down Syndrome NSW Library Collection
FAMILY RELATIONS
Q - Z by title
Retarded Isn't Stupid, Mom!
Kaufman, Sandra. Baltimore MD : Paul Brookes, 1988
An open, thoughtful account of a daughter's growing up and leaving home.
Roadmap to Holland
Graf Groneberg, Jennifer, New American Library, 2008.
Jennifer Groneberg is a professional writer, who lays out the “road map” that she needed to navigate the first two years of her son’s life. Avery was born prematurely, has Down syndrome, a fraternal twin, Bennett, and a big brother, Carter.
Ryan's Rainbow: The first eighteen years in the life of Ryan Clark, a boy with Down syndrome told through the eyes of his dad.
Clarke, Gerry. Hallett Cove, S. Aust. : Gerry Clarke, 2003
The author removes some of the myths and mystery that surround raising a child with a disability, and will inspire parents and siblings facing a similar challenge.
S for Stephen: S for Special
Evans, Pearl. Wales, UK : The author, 1999
The author was Stephen’s teacher at school and remains a friend.
Sally: Face Like a Flower
Anderson, Bill. Pickering N Yorks : Dent Dale, 2004
Sally, a talented young woman with Down syndrome died at age 25 years. But in her short life she produced many paintings, and was well known as an artist in the UK. Her works, originals, reproductions and Christmas cards raised over a quarter of a million pounds for charities.
Shorty
Revolution Earth Productions. Rutherford, NJ : Revolution Earth Productions, 2003
DVD. Duration: 86 minutes.
A documentary about the life and work of a 55 year old man with Down syndrome and his relationship with his brother .
Show me no mercy: a compelling story of remarkable courage
Perske, Robert. Nashville, Abingdon Press, 1992
A novel about a young man with DS and his father, and how they coped with a family tragedy.
Smiling at Shadows: a mother's journey through heartache and joy
Waites Junee, and Swinbourne, Helen. Sydney : HarperCollins, 2001
An Australian mother's account of family life with her now adult son, who has autism. Very readable.
Sometimes Miracles Hide: Stirring letters from those who discovered God's blessings in a special child
Carroll, Bruce. (ed.). Louisanna : Howard, 1999
Parents share their stories and prayers. Accompanied by a music CD of the same name.
Special Parent, Special Child
Sullivan, Tom. NY : Putnam Books, 1995
Parents of children with disabilities share their trials, triumphs and hard-won wisdom.
A Special Kind of Hero: Chris Burke's Own Story
Burke, Chris and McDaniel, Jo-Beth. Lincoln, NE : Authors Guild Backprint.com, 2001
Biography of actor, musician and self-advocate, Chris Burke, born in 1965 in New York. Chris starred in the TV series Life Goes On.
Spinning Straw: the Jeff Apple story
Green, Phyllis. Eastman Quebec : Diverse City Press, 1999
Jeff Apple was a beautiful baby who one day hit his head. From that day forward his family was subjected to an epic voyage past autism, developmental disability and extreme self-injury. Never wavering on love, they always found hope, joy and laughter. Theirs was a lifetime of spinning straw into gold.
Take Heart: For families living with disability
Hurley, Kate, Blue Bottle 2008.
Australian book written by a Christian parent of a child with autism. It has stories from many parents of children with disabilities and each uses scripture to answer questions about disability. Only one has a child with Down syndrome but they all have a common interest in making sense of having a child with a disability and society.
The teachings of Jon
Jennifer Owensby (Director). Durham, NC : Waking Heart Films, 2006
1 Videodisc (DVD). Duration: 56 minutes.
This soul-searching and funny documentary about Jon, a 40 year old man who has Down syndrome, ponders the serious questions of how we value each other and what is truly important in life. Made by Jon's sister and family, the message they impart is that although Jon has an IQ of 20 and does not talk, he has an important purpose; not necessarily to learn, but to teach.
These Are Our Children: Twins, Triplets and Down Syndrome
McDonald, Linda. Mooloolah, Queensland : the Author, 1997
The author has compiled a collection of stories from Australian families where a child with Down syndrome is one of twins or triplets.
Tuesday's child
Evans, Kathy. Bantam Australia, 2007
"In every life there is a defining moment: Caoimhe's diagnosis was mine…". Journalist Kathy Evans writes about the birth of her third child, born with Down syndrome. The book resulted from an award winning series of articles.
Uncommon fathers: reflections on raising a child with a disability
Meyer, Donald J. (ed.). Bethesda MD : Woodbine House, 1995
A collection of essays by fathers who were asked to reflect and write about the life-altering experience of having a child with a disability.
Up Close: a mother’s view
Yaron-Field, Fiona, Bunker Hill, 2008.
Wonderful photographic journal of a girl with Down syndrome by her mother. The photographs cover the first twelve years of Ophir’s life and together with some text, show the relationship between mother and daughter and their life
Up Syndrome
Graves, Duane (ed.). Austin, TX : Trisomy Films, 2000
Video. Duration: 82 minutes
Screened at the Dallas Video Festival and winner of Best Documentary. About the filmmakers friendship with one of his childhood chums, Rene Moreno, a 32 year man with Down syndrome.
Ups and Downs: lives of love, challenge and commitment
Courtney, Catherine. (ed.). Blackburn, Vic : PenFolk Publishing, 2000
An anthology of stories from seventeen Australian families about their experiences of having a child with Down syndrome.
Windows into Heaven
byTetschner,Stacy & Michelle, Brookes Publishing, 2008.
Collection of stories by parents of all ages of people with Down syndrome. The stories are short and varied and very readable.
The Year my Son and I were Born: A story of Down syndrome, motherhood and self-discovery
Soper, Kathryn L., Globe Pequot Press, 2009.
The editor of the collection of parent stories, Gifts, tells her own story of her son’s first year. She tells of her struggles with accepting a “special” child and looks at it in the context of her Mormon family.
You can call me Ellie
Rennie, Anne McCullagh. Sydney : New Holland, 2005
One Australian family's story of love and determination. A writer of fiction, Anne Rennie tells her story and the courage, persistence and downright stubborn refusal to budge as Ellie battles to prove that she is an individual with the ability to achieve beyond all expectations.
You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children with Disabilities
Kelin, S. and Shive. K. (eds.). NY : Kensington, 2001
A collection of short essays by parents of children with intellectual disabilities, most of whom have a child with Down syndrome. Each chapter addresses a particular issue chosen by the writer and covers the whole life span.
Your Name is Olga
Espinas, Josep M. London : Unwin Hyman, 1989
This book is a remarkable series of letters from the celebrated Catalan writer and journalist Josep M. Espinas to his thirty-two year old daughter, Olga, who has Down syndrome.
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