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Down Syndrome NSW Library Collection
FAMILY RELATIONS
G - L by title
Gifts: Mothers reflect on how children with Down syndrome enrich their lives
Soper, Kathryn Lynard (ed.). Bethesda MD : Woodbine House, 2007
Has sixty three personal essays from mothers from a wide range of backgrounds. They write of grief, hope, struggle and rewards. This is a book of love, hope and joy.
Gifts 2: How people with Down syndrome enrich the world
Soper, Kathryn Lynard (ed.). Bethesda MD : Woodbine House, 2009
Sequel to Gifts. This one includes stories by siblings, grandparents, other relatives, friends, teachers and mothers of older children.
Going the distance
i.d.entity.w.a. Perth, WA : i.d.entity.w.a., [1993]
Video. Duration 30 minutes
Gives an honest portrayal of the lives of three fathers of children who have intellectual disabilities. This video seeks to explore relationships, work and family responsibilities, dealing with feelings and other
issues. Winner, Bronze Medal NY Film Festival 2003
Grown man now
Schulz, Jane, in2wit, 2008.
The story of Billy Schulz, a man with Down syndrome born in 1956, written by his mother, Jane, a special education teacher. Her blog is at http://grownmannow.blogspot.com/
It's a long road
Lange, Noreen. Perth, WA : Carers Association of WA, 2000
Video. Duration 52 minutes
A portrayal of the emotional journey of four women raising children with disabilities. The many stages of the grieving process along with relationships, siblings, genetics and other relevant issues are explored.
Just like us: parenting children with intellectual disabilities
Martin, Carol. Melbourne, Vic : Lothian Books, 2003
The author's story of her life after 1980 when she became the mother of identical twins with an intellectual disability and cerebral palsy.
Karina has Down Syndrome
Rogers, Cheryl and Dolva, Gun. Lismore, NSW : Southern Cross University Press, 1998
A mother's account of her young daughter, who has DS and is later diagnosed with ADHD.
Lessons from my child: parents' experiences of life with a disabled child
Thomas, Bernadette (ed.). Sydney : Finch Australia, 2004
A favourite with readers. A collection of short stories from parents who openly and honestly share their feelings, under chapter headings titled grief, denial, anger, depression, acceptance, empowerment, love, joy and laughter. Presents all aspects, good and bad, challenging and rewarding from the parents' perspective.
Letting go: the story of Deb
Broughton, Brian and Broughton, Betty. Ferntree Gully, Vic : The Broughton Family Trust, 2005
Our reviewer found this book both reassuring and challenging. It is not a manual with answers. It is the story of how one young woman and her family prepared for the future.
Life behind glass: a personal account of autism spectrum disorder
Lawson, Wendy. Lismore, NSW : Southern Cross University Press, 1998
The author describes her journey from her sense of self as being non-existent to becoming a mother of four and university graduate.
Life as we know it: A father, a family and an exceptional child
Berube, Michael. NY : Pantheon Books, 1996
An American professor of English reflects on his family's life and thinking since the arrival of their young son who has Down syndrome.
Lily Videos: a longitudinal view of life with Down syndrome
Melbourne : Educational Media Australia [nd]
Video. Set of three videos: duration of 15 minutes each.
Lil's mother compiled video footage of Lily who has Down syndrome, at age 10, 20 and 30 years over the years 1975-1995. A good quality series, showing a young woman growing and learning, speaking for herself about her life and about the supports she uses to maintain the lifestyle of her choice.
Little Ones Like Sarah
Pagliano, Paul and Ainge, David (eds.). Townsville : John and Claudia Power, 1999
A family's memories of their daughter, Sarah, who was born with Down syndrome. Sarah died as a toddler, from causes unrelated to Down syndrome.
Living in the real world: families speak about Down's syndrome
Goodney, C. F. (ed.). London : Twenty One Press, 1991
Contributors to this book are parents with a child between the ages of two and eight, in the East London borough of Newham. Many of these are migrant families, from Pakistan, West Africa, the Punjab, and Ireland. Parents speak about the intelligence, physical beauty and sexuality of their children, their places in the family, school and society, and about their own personal and intellectual growth as parents.
Living with Max
Lewis,Sandy, London:Vermilion, 2008.
A mother’s story of her son, Max, who has Down Syndrome and their family. She relates her feelings about the birth, education, family dynamics, dealing with friends and strangers, holidays, the start of the teen years and her own battle with depression. Max is an actor and was in the film, Notes of a Scandal as well as other roles
Love you to pieces: Creative writers on raising a child with Special Needs,
Kamata, Suzanne,ed., Beacon Press, 2008.
Poets, memoirists and fiction writers relate their experiences caring for their children with special needs. The stories are all beautifully written and include a contribution by Michael Berube (father of a child with Down Syndrome) who wrote Life as We Know It.
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